Privacy policy

This privacy policy applies between you, the User of this Website and THE NATIONAL WIEDEMANN-STEINER SYNDROME WARRIORS (NWSSW), the owner and provider of this Website. NWSSW takes the privacy of your information very seriously. This privacy policy applies to our use of any and all Data collected by us or provided by you in relation to your use of the Website.

Please read this privacy policy carefully.

Who we are

Our website address is: https://nwsswarriors.org.uk

THE NATIONAL WIEDEMANN-STEINER SYNDROME WARRIORS (NWSSW)

37 Palesides Avenue, Ossett, West Yorkshire, WF5 9NL

Definitions and interpretation 

In this privacy policy, the following definitions are used:

Data collectively all information that you submit to NWSSW via the Website. This definition incorporates, where applicable, the definitions provided in the Data Protection Laws;

Cookies a small text file placed on your computer by this Website when you visit certain parts of the Website and/or when you use certain features of the Website. Details of the cookies used by this Website are set out in the clause below and in our Cookie Declaration;

Data Protection Laws any applicable law relating to the processing of personal data, including but not limited to the Directive 96/46/EC (Data Protection Directive) or the GDPR, and any national implementing laws, regulations and secondary legislation, for as long as the GDPR is effective in the UK;

GDPR the General Data Protection Regulation (EU) 2016/679;

NWSSW,  we or us UK and EU Cookie Law User or you 

NWSSW, a charity in England and Wales with registered charity number 1191194 whose registered office is at 37 Palesides Avenue, Ossett, West Yorkshire, WF5 9NL.

The Privacy and Electronic Communications (EC Directive) Regulations 2003 as amended by the Privacy and Electronic Communications (EC Directive) (Amendment) Regulations 2011.

Any third party that accesses the Website and is not either

(i) employed by NWSSW and acting in the course of their employment or

(ii) engaged as a consultant or otherwise providing services to NWSSW and accessing the Website in connection with the provision of such services;

 

Website the website that you are currently using, www.nwsswarriors.org.uk, and any sub-domains of this site unless expressly excluded by their own terms and conditions.

In this privacy policy, unless the context requires a different interpretation: the singular includes the plural and vice versa; references to sub-clauses, clauses, schedules, or appendices are to sub-clauses, clauses, schedules or appendices of this privacy policy; a reference to a person includes firms, companies, government entities, trusts and partnerships; “including” is understood to mean “including without limitation”; reference to any statutory provision includes any modification or amendment of it; the headings and sub-headings do not form part of this privacy policy.

 

Scope of this privacy policy 

• This privacy policy applies only to the actions of NWSSW and Users with respect to this Website. It does not extend to any websites that can be accessed from this Website, including, but not limited to, any links we may provide to social media websites.

• For purposes of the applicable Data Protection Laws, NWSSW is the “data controller”. This means that NWSSW determines the purposes for which and the manner in which your Data is processed.

 

Data collected 

We collect, store and use the following kinds of personal information:

• Your name and contact details, including postal address, telephone number, email address and, where applicable, your social media profile

   

• Financial information you provide where you make a payment, such as bank details or credit/debit card details, although we don’t store credit or debit card details (see below)

   

• Information about your computer/mobile device and your visits to and use of this website, including for example your IP address and geographical location
• Information about our services which you use/which we consider of interest to you
• Information as to whether you are a tax payer so that we can claim Gift Aid
• Any other personal information you share with us as described above

 

 

Your debit and credit card information

If you use your credit or debit card to donate to us online we will use a specialist payment processor. We will also ensure that card details are handled securely under Payment Card Industry (PCI) Data Security Standards. For more information about these Standards see here – https://www.pcisecuritystandards.org/about_us/

We never store your credit or debit card details following the completion of your transaction. All card details and validation codes are securely destroyed once the donation has been processed.

Please do not send an email containing any credit or debit card details, since it will be immediately deleted and no payment will be taken. If this happens, we’ll let you know.

All donations should be completed through the donation page on our website (www.nwsswarriors.org.uk).

 

How we collect Data 

We collect Data in the following ways:

a.data is given to us by you

b.data is collected automatically

 

Data that is given to us by you 

NWSSW will collect your Data in a number of ways, for example:

when you contact us through the Website, by telephone, post, e-mail or through any other means;

when you elect to receive marketing communications from us;

when you use our services;

in each case, in accordance with this privacy policy.

 

Data that is collected automatically 

To the extent that you access the Website, we will collect your Data automatically, for example:

We automatically collect some information about your visit to the Website. This information helps us to make improvements to Website content and navigation and includes your IP address, the date, times and frequency with which you access the Website and the way you use and interact with its content.

We will collect your Data automatically via cookies, in line with the cookie settings on your browser. For more information about cookies and how we use them on the Website, see the section below headed “Cookies”.

 

Our use of Data 

Any or all of the above Data may be required by us from time to time in order to provide you with the best possible service and experience when using our Website. Specifically, Data may be used by us for the following reasons: internal record keeping; improvement of our products/services; transmission by email of marketing materials that may be of interest to you; in each case, in accordance with this privacy policy.

• We may use your Data for the above purposes if we deem it necessary to do so for our legitimate interests. If you are not satisfied with this, you have the right to object in certain circumstances (see the section headed “Your rights” below).

• For the delivery of direct marketing to you via e-mail, we’ll need your consent, whether via an opt-in or soft-opt-in:

Soft opt-in consent is a specific type of consent which applies when you have previously engaged with us (for example, you contact us to ask us for more details about a particular product/service, and we are marketing similar products/services). Under “soft opt-in” consent, we will take your consent as given unless you opt-out.

For other types of e-marketing, we are required to obtain your explicit consent; that is, you need to take positive and affirmative action when consenting by, for example, checking a tick box that we’ll provide.

If you are not satisfied with our approach to marketing, you have the right to withdraw consent at any time. To find out how to withdraw your consent, see the section headed “Your rights” below.

 

Keeping Data secure 

We will use technical and organisational measures to safeguard your Data, for example:

a. access to your account is controlled by a password and a user name that is unique to you.

b. we store your Data on secure servers.

• Technical and organisational measures include measures to deal with any suspected data breach. If you suspect any misuse or loss or unauthorised access to your Data, please let us know immediately by contacting us via this e-mail address: hello@nwsswarriors.org.uk

• If you want detailed information from Get Safe Online on how to protect your information and your computers and devices against fraud, identity theft, viruses and many other online problems, please visit www.getsafeonline.org. Get Safe Online is supported by HM Government and leading businesses.

 

Data retention 

• Unless a longer retention period is required or permitted by law, we will only hold your Data on our systems for the period necessary to fulfil the purposes outlined in this privacy policy or until you request that the Data be deleted.

• Even if we delete your Data, it may persist on backup or archival media for legal, tax or regulatory purposes.
• We continually review what personal information and records that we hold, and delete what is no longer required. We never store payment card data after the transaction has been completed.

 

Your rights 

You have the following rights in relation to your Data:

Right to access – the right to request (i) copies of the information we hold about you at any time, or (ii) that we modify, update or delete such information. If we provide you with access to the information we hold about you, we will not charge you for this, unless your request is “manifestly unfounded or excessive.” Where we are legally permitted to do so, we may refuse your request. If we refuse your request, we will tell you the reasons why.

Right to correct – the right to have your Data rectified if it is inaccurate or incomplete. c.

Right to erase – the right to request that we delete or remove your Data from our systems.

Right to restrict our use of your Data – the right to “block” us from using your Data or limit the way in which we can use it.

Right to data portability – the right to request that we move, copy or transfer your Data. f.

Right to object – the right to object to our use of your Data including where we use it for our legitimate interests.

• • To make enquiries, exercise any of your rights set out above, or withdraw your consent to the processing of your Data (where consent is our legal basis for processing your Data), please contact us via this e-mail address: hello@nwsswarriors.org.uk

• • If you are not satisfied with the way a complaint you make in relation to your Data is handled by us, you may be able to refer your complaint to the relevant data protection authority. For the UK, this is the Information Commissioner’s Office (ICO). The ICO’s contact details can be found on their website at https://ico.org.uk/.

• • It is important that the Data we hold about you is accurate and current. Please keep us informed if your Data changes during the period for which we hold it.

 

Links to other websites 

• • This Website may, from time to time, provide links to other websites. We have no control over such websites and are not responsible for the content of these websites. This privacy policy does not extend to your use of such websites. You are advised to read the privacy policy or statement of other websites prior to using them.

 

Changes in business ownership and control 

• • NWSSW may, from time to time, expand or reduce our business and this may involve the sale and/or the transfer of control of all or part of NWSSW. Data provided by Users will, where it is relevant to any part of our business so transferred, be transferred along with that part and the new owner or newly controlling party will, under the terms of this privacy policy, be permitted to use the Data for the purposes for which it was originally supplied to us.

• • We may also disclose Data to a prospective purchaser of our business or any part of it.

• • In the above instances, we will take steps with the aim of ensuring your privacy is protected.

 

Cookies 

For full details about the Cookies we use please read our Cookie Policy.

• • This Website may place and access certain Cookies on your computer. NWSSW uses Cookies to improve your experience of using the Website and to improve our range of services. NWSSW has carefully chosen these Cookies and has taken steps to ensure that your privacy is protected and respected at all times.

• • All Cookies used by this Website are used in accordance with current UK and EU Cookie Law.

• • Before the Website places Cookies on your computer, you will be presented with a message bar requesting your consent to set those Cookies. By giving your consent to the placing of Cookies, you are enabling NWSSW to provide a better experience and service to you. You may, if you wish, deny consent to the placing of Cookies; however certain features of the Website may not function fully or as intended.

• • You can find a list of Cookies that we use in the Cookie Declaration.

• • You can choose to enable or disable Cookies in your internet browser. By default, most internet browsers accept Cookies but this can be changed. For further details, please consult the help menu in your internet browser.

• • You can choose to delete Cookies at any time; however, you may lose any information that enables you to access the Website more quickly and efficiently including, but not limited to, personalisation settings.

• • It is recommended that you ensure that your internet browser is up-to-date and that you consult the help and guidance provided by the developer of your internet browser if you are unsure about adjusting your privacy settings.

• • For more information generally on cookies, including how to disable them, please refer to www.aboutcookies.org. You will also find details on how to delete cookies from your computer.

 

General 

• • You may not transfer any of your rights under this privacy policy to any other person. We may transfer our rights under this privacy policy where we reasonably believe your rights will not be affected.

• • If any court or competent authority finds that any provision of this privacy policy (or part of any provision) is invalid, illegal or unenforceable, that provision or part-provision will, to the extent required, be deemed to be deleted, and the validity and enforceability of the other provisions of this privacy policy will not be affected.

• • Unless otherwise agreed, no delay, act or omission by a party in exercising any right or remedy will be deemed a waiver of that, or any other, right or remedy.

• • This Agreement will be governed by and interpreted according to the law of England and Wales. All disputes arising under the Agreement will be subject to the exclusive jurisdiction of the English and Welsh courts.

 

Changes to this privacy policy 

• • NWSSW reserves the right to change this privacy policy as we may deem necessary from time to time or as may be required by law. Any changes will be immediately posted on the Website and you are deemed to have accepted the terms of the privacy policy on your first use of the Website following the alterations.

You may contact THE NATIONAL WIEDEMANN-STEINER SYNDROME WARRIORS by email at hello@nwsswarriors.org.uk

1st Ferbruary 2023